Dear @kardashians, I am Emma Aleksanyan and My daughter Nika has a rare and serious genetic neuromuscular condition, spinal muscular atrophy-1 (SMA). I hope you would consider helping us spreading the word out about SMA and Nika's personal story.
We have one month to raise funds for Zolgensma, it's very costly but life-saving medication. This medication is designed to replace the missing gene with a functional copy.
It would mean so much to us if you would be able to share Nika's story on social media and raise awareness about SMA.
Thank you in advance! @savenikaaleksanyan in English language @nika_smaylik in Russian language.